Minnesota-based Tamarack Habilitation Technologies, Inc. is launching a clothing line specifically designed for children with epidermolysis bullosa (EB), a painful, rare disease where any amount of friction causes the skin to blister and slough off. The clothing incorporates GlideWear — Tamarack’s patented, low-friction fabric technology — over the parts of the body at increased risk for injuries, such as the elbows and knees. The GlideWear fabric protects the skin from harmful friction.
Being on the move is part of being a kid. But for a child with EB, even a slow-motion fall can mean a layer of skin being torn off the hands and knees. Their skin is so fragile, it’s often compared to butterfly wings, and kids with EB are called “butterfly children.” Parents of children with EB constantly worry about falls and the resulting blisters and wounds.
According to the Dystrophic Epidermolysis Bullosa Research Association of America, 25,000 people in the United States have EB, and 200 children with EB are born each year. With its new GlideWear clothing line, Tamarack hopes to provide these children with skin protection, comfort and a higher quality of life.
Tamarack’s GlideWear team has also been working with the Blood and Marrow Transplant (BMT) Center at the University of Minnesota Masonic Children’s Hospital. Children with EB travel from around the world to receive bone marrow transplants through the hospital’s innovative program.